Caregiver Resources

Please note: any links to Amazon are affiliate links. This means that, at zero cost to you, I will earn an affiliate commission if you click through the link and finalize a purchase.

Blog Posts on Dementia

View all of our blog posts on caregiving here.

Special Needs Caregiving

Informative Resources

Caregivers Support Guide for Raising Kids With Disabilities from LawFirm.com
We have created the Caregiver’s Support Guide, a comprehensive resource designed to help individuals and families caring for kids with disabilities. This guide offers caregivers practical advice, emotional support, and crucial information to help them navigate their challenges.

We have created a comprehensive guide that addresses a wide range of topics, including:

  • Understanding the emotional and physical demands of caregiving

  • Accessing medical and therapeutic resources

  • Tips for managing caregiver stress and self-care

Caregiving Resources

Lili's Book & Planner

Lili’s Caregiver’s Guide
My Caregiver’s Guide will show you PROVEN METHODS AND SYSTEMS to help you create the best possible life and passing for your Loved Ones.

Learn how to bring peace, organization and a sense of control into your life as a Caregiver.

Lili’s Priority Planner
I experienced a lot of frustration with the planners that were available when I was a Caregiver. I created this beautiful, undated 6-month Priority Planner that allows you to keep track of your weekly “to do’s” for your top priorities for you, your Loved One, and more. It is available now and I am so excited for you to see it!! It is everything I wanted and needed in a paper planner but could not find.

  • Sections for kids, caregiving, appointments and more

  • Places to keep track of birthdays, anniversaries and other important dates

  • Monthly overview pages

  • Undated so you can start when you’re ready

Clothing

Silverts
Adaptive clothing is specially designed clothing to help make it easier for people who have difficulty dressing. Having clothing that has been adapted can make such a positive difference in a person’s life by giving them the independence to continue to dress themselves or enable carers to dress them with ease and comfort.

Informative Resources

Administration for Community Living (ACL)
The Administration for Community Living was created around the fundamental principle that older adults and people of all ages with disabilities should be able to live where they choose, with the people they choose, and with the ability to participate fully in their communities.

COVID-19 Resources for Older Adults and Caregivers
COVID-19 is a respiratory disease that continues to affect people and communities worldwide. Older adults are more likely than younger people to get very sick from the disease. The resources below are from the National Institute on Aging (NIA), part of the National Institutes of Health (NIH), and other government agencies. This information can help older adults and their caregivers learn more about COVID-19, locate resources and services in their area, and find out about participating in COVID-19 research.

Caregiver Action Network (CAN)
The mission of the Caregiver Action Network (CAN) is to promote resourcefulness and respect for the more than 90 million family caregivers across the country. Support Groups

​​Compassion Fatigue Awareness Project
High levels of compassion fatigue can be managed with a number of authentic, sustainable strategies. This site has numerous resources we have found for caregivers working in many professions. The Compassion Fatigue Awareness Project also offers original training materials, workbooks, and texts.

memorywell
A digital life story that can be read by busy frontline caregivers in one minute, it combines the power of storytelling with innovative data insights to help care providers provide more empathetic and personalized care to their patients.

National Alliance for Caregiving
Established in 1996, NAC is dedicated to improving the quality of life for friend and family caregivers and those in their care, by advancing research, advocacy, and innovation. info@caregiving.org

National Council on Aging (NCOA)
We believe every person deserves to age well. That’s why we’re on a path to improve the lives of 40 million older adults by 2030. Learn about the work we do, the people we serve, and why equitable aging matters now more than ever.

Unseen
About the Documentary – Unseen follows Jess and Ryan Ronne, a blended family with 8 children, including Lucas, who has profound disabilities requiring total care. Their situation has gotten more and more challenging as Lucas gets older and stronger. With limited resources and support, caregiving takes a toll on their physical and mental health.

Mental Health, Sensory Support & Therapy

American Music Therapy
Research supports Music Therapy effectiveness in many areas such as: overall physical rehabilitation and facilitating movement, increasing people’s motivation to become engaged in their treatment, providing emotional support for clients and their families, and providing an outlet for expression of feelings. info@musictherapy.org

Hadley – Low Vision Resources
Hadley offers practical help, connection and support free of charge to anyone with a visual impairment, their families and professionals supporting them. With Hadley, you can discover new ways to do things that have become more difficult due to vision loss and connect with a network of peers who “get it.” And you don’t need to come to Hadley. Hadley’s help comes to you; online, on the phone or through the mail.

Mental Health in Nursing Homes
Mental health is a critical aspect of overall well-being for individuals living in nursing homes. The challenges faced by older adults in these settings often contribute to increased rates of depression and anxiety. Learn more about these mental health conditions and how caregivers and facilities can provide support to improve a resident’s quality of life.

Support Groups

Caregiver Action Network (CAN)
The mission of the Caregiver Action Network (CAN) is to promote resourcefulness and respect for the more than 90 million family caregivers across the country. Support Groups

ElderSource – Support Groups
ElderSource’s Virtual Caregiver Support Group gives caregivers a safe place to share information, ask questions, voice personal feelings and stories. The support group makes it possible for caregivers to connect face-to-face in real time using today’s technology.

Family Caregiver Alliance – Support Groups
FCA facilitates and sponsors several types of support groups, both in person and online.

Previous
Previous

Angel Resources

Next
Next

Dementia Resources