Caregiver’s Blog

Caregiving Chekesha Kidd Caregiving Chekesha Kidd

When to Step In, When to Step Back: A Caregiver’s Balancing Act

Caregiving for an aging parent is an emotional journey that requires balancing love, responsibility, and strategy. Navigating the role reversal—becoming a parent to your parent—presents challenges, especially in preserving their dignity while ensuring safety. This involves deciding when to step in, guided by factors like safety, understanding consequences, and long-term financial impact. Open-ended conversations and empathy are essential in fostering collaboration and mutual respect.

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Caregiving braininjurywise Caregiving braininjurywise

Respite, not Re: Spite

As my parents’ health declines and my siblings become more involved in their Caregiving, I realize I am struggling with fear and a loss of control mixed with a bit of spite. Despite the harmonious portrayals in movies, real-life caregiving is often messy with misunderstandings, unresolved issues, personality clashes, and anxiety. How can we soften these interactions without damaging our relationships?

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Caregiving braininjurywise Caregiving braininjurywise

The Way Back Machine

Caring for your aging parents can open a “time machine” into your past. In this caregiving role, where childhood memories and family dynamics resurface, you might find yourself revisiting both fond and challenging moments from the past. It can be frustrating but it can also help you understand how you became the person you are today.

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Caregiving Lanie Kanat Caregiving Lanie Kanat

Gratitude

Showing my gratitude to the people in our lives who support us and lift us up through my handmade art is a huge honor! Handwritten notes are such valuable gifts. This passion began when my son, who has Fragile X syndrome and autism, was young and we had a specialist who would come to our house to work with him. Her support and dedication truly impacted me, reinforcing our values of grace and gratitude.

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Caregiving braininjurywise Caregiving braininjurywise

Caregiving with a Traumatic Brain Injury

Alongside the recovery and daily physical challenges that come with a traumatic brain injury, I am a Caregiver for my aging parents. I struggled mightily in the beginning but have since learned to give myself grace and forgiveness and have learned some things that would help any Caregiver.

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Dementia Brenda Freed MMUS Dementia Brenda Freed MMUS

How to Talk to Children About Alzheimer’s Disease and Incorporate Them into the Care

When a Loved One is diagnosed with Alzheimer’s, it’s important to take the time to address children’s fears and questions about the disease. Getting kids involved in the care of the affected person, while giving them clear directions on when to ask an adult to intervene, helps them build empathy and continue to create positive memories with their Loved One and helps children feel included.

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Dementia Lyle Weinstein Dementia Lyle Weinstein

Generosity – The Heart of Caregiving

As your Loved One’s ability to understand words diminishes, they will focus on the tone of your voice and your body language. This is where the work I do comes in – helping caregiver support their loved ones with dignity and warmth.

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Dementia Cindy Weinstein, Ph.D. Dementia Cindy Weinstein, Ph.D.

Finding the Right Words

I am honored to write this column for the Much Love, Lili newsletter and want to use this opportunity to talk about why I wrote my book, Finding the Right Words: A Study of Literature, Grief, and the Brain.

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Dementia Lili Fiore Dementia Lili Fiore

Putting Your Loved One First Might Mean not Telling the Truth

If your Loved One has been diagnosed with any type of dementia, or if they just get confused sometimes, it may be tempting to correct, re-orient, or tell them the truth of their actual situation. I would like to give you a few things to consider before you decide to, essentially, tell your Loved One that they are wrong.

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Grief Lili Fiore Grief Lili Fiore

Supporting Family and Friends Through Unresolved Grief

Grief is very much a part of our lives. We usually think of grief as happening after the death of a Loved One but grief can also be brought on by changes, losses and transitions that are unrelated to death. Generally we just press on hoping time will take care of whatever we’re feeling without ever facing it head on. It is the piling up of this unresolved grief that often haunts us and I think keeps us from being as supportive as we can be to both ourselves and others.

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Grief braininjurywise Grief braininjurywise

Good Grief!!

Grief is usually thought of as being sad or crying but, with many years of grief experience under my belt, I have found that grief encompasses a much wider range of emotions, including impatience and anger. This range of emotions – including sadness – come and go and come again, often without warning. And while we tend to push it away, I’d like to offer you a new way to look at it.

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Grief Kimberly Shepper Grief Kimberly Shepper

Loss of 3 Beloved Children in a 5 year Time Span!

My husband and I could not have imagined when we met in 4th grade the curve-balls we would be thrown on our journey together. The weight of our losses and struggles can be overwhelming but our youngest, living son is truly a blessing and a balm.

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Grief Lili Fiore Grief Lili Fiore

The Heartbreaking Loss of Our Parents

One of the cruelest things about life is the loss of our parents. Maybe you weren’t as close to your parents as I was, but it still is a loss. It is a loss in that there is no longer hope that the relationship(s) could improve, or disagreements be resolved. Or maybe it is a loss because they never got to meet your children and so, they couldn’t fulfill the role of doting grandparent or help you with childcare as they had promised. Perhaps you had a fight or disagreement and they died before you had a chance to make it right.

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